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DO NOT SCROOL PAST THIS WITHOUT LOOKING > A rare chance for TS to prove its worth

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    DO NOT SCROOL PAST THIS WITHOUT LOOKING > A rare chance for TS to prove its worth

    I came across this story on my social media.....hoping the TS can provide some positive support....https://www.gofundme.com/f/gio-perry...cp+share-sheet
    Show some love.

    #2
    How is he doing?

    Comment


      #3
      Corona

      anyone else think this could be one of the first main cases corona? how is he doing now?

      Comment


        #4
        Originally posted by Unregistered View Post
        anyone else think this could be one of the first main cases corona? how is he doing now?

        JUNE 6, 2020
        by Cera McDermott, Beneficiary
        Hello All, we wanted to give you an update on Giovanni's progress. He has made a remarkable recovery so far! He is now not only walking, but running, dancing, swimming, and back to eating a full diet all on his own! He still has some balance issues and weakness in his right arm and hand but it is getting stronger everyday!

        On February 5th, Gio underwent a 5-6 hour embolization procedure. The doctor came out half way through the procedure and told us that the AVM was a little bigger than they thought and that they were only able to get it 60-70% embolized at that point, and would have to reschedule the surgery and do one more embolization before surgery. We were then given the next surgery and embolization date of March 4th and 5th. On March 4th, Gio underwent another 5-6 hour embolization and the doctor was able to get it 95-99% embolized! The embolization is a glue that is injected into the AVM that cuts off the blood supply and would make the surgery easier and less risk of a bleed during surgery. That evening while Gio was recovering, his neurosurgeon came in our room and asked to speak with us privately. He had a paper in his hand and began to show us statistics of the rate of morbidity or mortality in removing an AVM from deep in the cerebellum. He told us that he originally thought that the risk rate was about 10%, but after reading this article, he saw that it was actually 20%. He then told us that he thinks that we should find another neurosurgeon that has more experience with removing AVM's in the posterior fossa/cerebellum. We were devastated! We thought that this nightmare was finally going to come to an end and our son was going to be cured, but now we started to realize that this journey is not over. At any moment, since it is not fully embolized, it could bleed again and doctors say that he would most likely not survive another bleed in this area. The rate of mortality for a bleed in the posterior fossa is 70%...

        Our neurosurgeon in Orlando told us that we needed to act soon and that we did not have months to wait, and he gave us a few references of neurosurgeons to contact and put us in touch with Dr. McCrea at Holtz Children's hospital in Miami. We drove to Miami the following week and consulted with her. She felt that she needed to see a new full MRI before she could make a determination on whether she felt comfortable operating. We had an MRI scheduled within a couple of weeks and then it was canceled due to Covid. We were told that since the MRI was for a surgery, that it was canceled because they were not doing any elective surgeries. We finally got the call that they were scheduling MRI's again and had an MRI done a couple of weeks ago. Dr. McCrea then video conferenced with us and let us know that she feels that the best treatment for Gio is Gamma Knife Radiation in a lower dose since it is next to his brain stem. It is a procedure that they use a precise form of radiation therapy that focuses intense beams of gamma rays with pinpoint accuracy to treat lesions in the brain. There are numerous side effects of GK, including another bleed and it also does not have a high success rate with AVM's that have already been embolized, and when they have to use less radiation. We told Dr. McCrea that we would really rather the surgery, so she said that she would like another angiogram done just to completely make sure that the AVM does not involve his brain stem and to also see what it is doing now since it was last embolized in March. We are praying that it has not recruited any new vessels. They have scheduled the angiogram for the 26th of June, so we are currently waiting for that.


        In the meantime, we have been researching like crazy and I came across a mother's post about her son's AVM rupture and how she is also searching for a doctor to give her options on healing her son. She consulted with a doctor, Rene Chapot, in Germany that is doing a procedure that is not being done here in the US and is curing AVM's 100% without invasive surgery or radiation! He can cure AVM's by both arterial embolization (which Gio has already had done) and transvenous embolization. So I sent him an email with all of Gio's records and imaging and he responded the next day. He said that he could 100% fully cure Giovanni's AVM with one transvenous treatment (since he has already had the transarterial embolizations completed)! I sent the email to Dr. Starke in Miami to get his opinion on what Dr. Chapot said and he responded right away and let us know that transvenous embolization is a fairly new procedure and could have high complication rates but we can talk about it when we come to see him for the angiogram on the 26th. We are ecstatic about this and have been given a new hope for our sons future!

        We want to let everyone know that we sincerely appreciate everyone that has prayed for him and helped us thus far! We can't even begin to tell you how thankful we are, and ask that you all please continue to pray for Gio and pray that we are able to make this treatment in Germany happen for him! If any of you are able to donate at this difficult time in our world, we would be so grateful! Thank you all so much and we will continue to keep you all updated! ❤❤

        Comment


          #5
          Originally posted by Unregistered View Post
          JUNE 6, 2020
          by Cera McDermott, Beneficiary
          Hello All, we wanted to give you an update on Giovanni's progress. He has made a remarkable recovery so far! He is now not only walking, but running, dancing, swimming, and back to eating a full diet all on his own! He still has some balance issues and weakness in his right arm and hand but it is getting stronger everyday!

          On February 5th, Gio underwent a 5-6 hour embolization procedure. The doctor came out half way through the procedure and told us that the AVM was a little bigger than they thought and that they were only able to get it 60-70% embolized at that point, and would have to reschedule the surgery and do one more embolization before surgery. We were then given the next surgery and embolization date of March 4th and 5th. On March 4th, Gio underwent another 5-6 hour embolization and the doctor was able to get it 95-99% embolized! The embolization is a glue that is injected into the AVM that cuts off the blood supply and would make the surgery easier and less risk of a bleed during surgery. That evening while Gio was recovering, his neurosurgeon came in our room and asked to speak with us privately. He had a paper in his hand and began to show us statistics of the rate of morbidity or mortality in removing an AVM from deep in the cerebellum. He told us that he originally thought that the risk rate was about 10%, but after reading this article, he saw that it was actually 20%. He then told us that he thinks that we should find another neurosurgeon that has more experience with removing AVM's in the posterior fossa/cerebellum. We were devastated! We thought that this nightmare was finally going to come to an end and our son was going to be cured, but now we started to realize that this journey is not over. At any moment, since it is not fully embolized, it could bleed again and doctors say that he would most likely not survive another bleed in this area. The rate of mortality for a bleed in the posterior fossa is 70%...

          Our neurosurgeon in Orlando told us that we needed to act soon and that we did not have months to wait, and he gave us a few references of neurosurgeons to contact and put us in touch with Dr. McCrea at Holtz Children's hospital in Miami. We drove to Miami the following week and consulted with her. She felt that she needed to see a new full MRI before she could make a determination on whether she felt comfortable operating. We had an MRI scheduled within a couple of weeks and then it was canceled due to Covid. We were told that since the MRI was for a surgery, that it was canceled because they were not doing any elective surgeries. We finally got the call that they were scheduling MRI's again and had an MRI done a couple of weeks ago. Dr. McCrea then video conferenced with us and let us know that she feels that the best treatment for Gio is Gamma Knife Radiation in a lower dose since it is next to his brain stem. It is a procedure that they use a precise form of radiation therapy that focuses intense beams of gamma rays with pinpoint accuracy to treat lesions in the brain. There are numerous side effects of GK, including another bleed and it also does not have a high success rate with AVM's that have already been embolized, and when they have to use less radiation. We told Dr. McCrea that we would really rather the surgery, so she said that she would like another angiogram done just to completely make sure that the AVM does not involve his brain stem and to also see what it is doing now since it was last embolized in March. We are praying that it has not recruited any new vessels. They have scheduled the angiogram for the 26th of June, so we are currently waiting for that.


          In the meantime, we have been researching like crazy and I came across a mother's post about her son's AVM rupture and how she is also searching for a doctor to give her options on healing her son. She consulted with a doctor, Rene Chapot, in Germany that is doing a procedure that is not being done here in the US and is curing AVM's 100% without invasive surgery or radiation! He can cure AVM's by both arterial embolization (which Gio has already had done) and transvenous embolization. So I sent him an email with all of Gio's records and imaging and he responded the next day. He said that he could 100% fully cure Giovanni's AVM with one transvenous treatment (since he has already had the transarterial embolizations completed)! I sent the email to Dr. Starke in Miami to get his opinion on what Dr. Chapot said and he responded right away and let us know that transvenous embolization is a fairly new procedure and could have high complication rates but we can talk about it when we come to see him for the angiogram on the 26th. We are ecstatic about this and have been given a new hope for our sons future!

          We want to let everyone know that we sincerely appreciate everyone that has prayed for him and helped us thus far! We can't even begin to tell you how thankful we are, and ask that you all please continue to pray for Gio and pray that we are able to make this treatment in Germany happen for him! If any of you are able to donate at this difficult time in our world, we would be so grateful! Thank you all so much and we will continue to keep you all updated! ❤❤
          He was supposed to have a surgery on June 26 and no word. I hope he is still alive!

          Comment


            #6
            Originally posted by Unregistered View Post
            He was supposed to have a surgery on June 26 and no word. I hope he is still alive!
            I saw a lot of words on different t coaches feeds this morning. Doesn’t look good.

            Comment


              #7
              Originally posted by Unregistered View Post
              I saw a lot of words on different t coaches feeds this morning. Doesn’t look good.
              Where did you see those posts? I can't find any.

              Comment


                #8
                Originally posted by Unregistered View Post
                Where did you see those posts? I can't find any.
                So any more word on this kid? Dead, alive?

                Comment

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